Patient Advocate Committee
Current committee members
Derek Elston, United Kingdom (Chair)
Androulla Eleftheriou, Cyprus (Co-chair)
Zack Pemberton-Whiteley, United Kingdom (Co-chair)
Members representing a Patient Advocacy Organization
|
CLL Advocates Network (CLLAN) |
Pierre Aumont |
|
CML Advocates Network |
Jan Geissler |
|
European Cancer Patient Coalition (ECPC) |
Jana Pelouchova |
|
European Federation of Associations of Patients with Haemochromatosis (EFAPH) |
Dag Erling Stakvik |
|
European Haemophilia Consortium (EHC) |
Amanda Bok |
|
European Organisation for Rare Diseases (EURORDIS) |
Ariane Weinman |
|
Lymphoma Coalition |
Natacha Bolaños |
|
MPN Advocates Network (MPN AN) |
Werner Zinkand |
|
MDS Alliance |
Sophie Wintrich |
|
Myeloma Patients Europe (MPE) |
Katie Joyner |
|
PNH Global Alliance |
Maria Piggin |
|
Acute Leukaemia Advocates Network (ALAN) |
Zack Pemberton-Whiteley, United Kingdom (Co-chair) |
|
ITP Support Association |
Derek Elston, United Kingdom (Chair) |
|
Thalassaemia International Federation (TIF) |
Androulla Eleftheriou, Cyprus (Co-chair) |
Aim:
To reflect the importance of ongoing, mutually beneficial dialogue and collaboration between hematology professionals and the patient advocacy community.
Contributing substantially to EHA’s mission of promoting excellence in patient care, research, and education.
Tasks & responsibilities
- TBD
Composition:
- 1 Chair
- 2 Vice chairs
- 11 Patient Advocacy Organizations as members
Rotation:
- 3 years for Chair and Vice-chair.
- After rotating off as (vice) chair, these individuals can continue representing their organization in the PAC.
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